It’s weird, yet kind of interesting, how being in hospital
desensitizes a person. Actually
not so much desensitizes as depersonalitizes, if such a word exists, and my
computer dictionary is telling me it doesn’t by underlining it in red, with
squiggles. But take the Bad Nurse
scenario I wrote about last week (you can read it here) – I just went through that whole
thing without really reacting properly. Afterwards, I spoke to my GP about him, and when I got
to the bit about how he wouldn’t look at my poor, fresh, angry, suppurating
Barbie butt wound, I found myself tearful. She was sympathetic and horrified as she should have been –
as I should have been at the time, but wasn’t, really, until I talked about it
with her, and then again when I wrote about it last week – and she mentioned
Post Traumatic Stress Disorder, which made me pull myself together. I wasn’t about to go through anything
that serious just because some arrogant nurse made me feel repulsive – I didn’t
watch anybody blown up by an IED, or have to deal with the death of a
child. I just had my feelings hurt
by an egocentric insensitive dickhead, which isn’t the same at all. At least, not in my book. But people do have PTSD after hospital
stays, so depersonalitized are they. (It’s my word, I’m gonna use it. I don’t care about your red squiggly
line, Word 2004 –wow, 2004? I really should upgrade..) There was no way I was
going to be one of them, though.
When I got out of hospital, I’d have post-operative healing and Crohn’s
to deal with, and I wasn’t interested in adding to that list. I don’t mind the complications of
Crohn’s that I occasionally get lumbered with – well, I do, but I accept them –
but adding PTSD to the mix wasn’t something I was going to do.
On the fifth night of what I’d been told would be an 8-10
day stay, my surgeon came and sat on my bed, putting his hand on my leg. As a married woman of a certain age,
it’s not often handsome men who aren’t my husband casually put a hand on my
leg. In the real world, I might feel
something – anger at his forwardness; bemusement that he thought it was ok,
perhaps even a frisson of something else – but in hospital, depersonalitized
(yep, still using it) as I was, it just felt comforting and entirely
appropriate. He told me he thought
this ward was a tough gig. He
didn’t know about the Hag or the Bad Nurse, but he knew what the place smelled
like, and how sick the people around me were, and he asked me if I thought I’d
be ok going home. Would I? Would I rather be in my own bed with
husband and teen waiting on me and nobody else’s effluent wafting under my
nose? Would I rather have my own
television and sky+ and shelf-fulls of dvds instead of the bizarre screen that
protruded from the ceiling, cost a fortune to watch, and occasionally showed
Andrew Lansley telling me how great the NHS was going to be now he was in
charge (if anything was going to give me PTSD ..)? Yes, I thought I’d be ok
with that. Might have to get teen
to come in and yell at me to shut up occasionally though, just so the transfer
wasn’t too extreme. He told me I’d
have to be very careful with the butt wound; I was to bathe in salt water at
least once a day, more if I could manage it, and get the nurse at my GP surgery
to check it once a week, unless I felt it was getting worse. He couldn’t stress enough how much I’d
have to take care of it. I felt a flash of vindication – yeah, Bad Nurse; it
needs to be taken care of – checked, dressing changed … But more than that, I
felt hugely relieved to be getting the hell out of there. The year before, I’d been sad to leave
the friends I’d made, and had come back to visit one patient every time I had a
hospital appointment. Although I
liked the woman next to me who was very sick, we hadn’t made that kind of a
connection. Once I was out of the ward this time, it was over. And I couldn’t have been happier about
that.
Of course, being told by the surgeon you’re going home the
next morning and actually being able to leave are two very different
things. He popped in during his
morning rounds at about 8.30am and confirmed that I could indeed go; I
gleefully called husband and told him the news, and we’d both been here before
enough times to know it wouldn’t exactly be imminent. We agreed he should come and get me at about noon. When the pharmacist came round at 10,
she wrote down all the drugs I’d need to take home with me, and said they
should be ready in a couple of hours – we were on target. You’d think I’d never been in hospital
before. You’d think I’d never been
discharged before. I actually
believed her. And then the pain
team came round to make sure I would have enough pain relief to go home with –
I don’t know if I’ve mentioned it, but having your anus sewn up is very
painful, as is having your torso cut open and resealed. Post-operative pain after such a huge
surgery is pretty extreme, and once they took away my clicky morphine drip
thing, they were having a bit of a battle getting it under control. It was decided I would go home with
liquid morphine. So far, they’d
been upping the dosage of liquid morphine on an almost four hourly basis, so I
was to be sent home with orders to take quite a lot of it at a time. I should tell you, it’s disgusting. It works, but it tastes so horrible,
it’s almost not worth it. So then
the pain team said they’d go and let the pharmacy know to add the liquid
morphine to my discharge meds. At
half past eleven, I saw the pharmacist on the ward again and asked her if my
drugs were at the nurses’ station yet.
She looked at me as if I had just asked her if the alien on her shoulder
would like a piece of chocolate.
Was I some kind of insane person? They’d be ready in a couple of hours
and not before. She was right; I
was some kind of insane person – I’d believed her when she’d told me they’d be
ready in a couple of hours. I
needed sectioning at the very least.
Husband turned up at noon and I broke it to him that we
wouldn’t be leaving for a while.
After an hour, I decided it might be an idea to get dressed, which is
when I discovered that my shoes were gone. My coat was in the cupboard where my clothes were meant to
be; my clothes were in the cupboard where my clothes were meant to be, but my
shoes were nowhere to be found. I
was trying to work out where else I could look for them and then husband made a
weird half-laugh, half-gasp kind of a noise and put his hand to his face in
embarrassment. He’d taken my shoes
home on the day of the surgery, he announced. And not thought to bring them back today. He said the car wasn’t far, that I’d
probably be fine. I didn’t have
slippers even; I had little socky things I’d bought from M&S because my
feet had swollen up after surgery the year before, like those old women you see
on buses and wonder why they haven’t just bought bigger shoes instead of
letting their flesh splay out between bits of the shoes they did buy. I didn’t like having that look, so I
hadn’t brought my slippers – the ones with proper soles, I’d spent four quid on
socky things. I was about to walk to the car in said socky things. And we were in London, so it had been
raining. And my meds still weren’t
there. I had to look over at the
Hag to remind myself that I did indeed want to go home, even if I had to do it
in bare, slashed up feet. Which I
didn’t, exactly. I took a big slug
of the liquid morphine that the nurse had brought round a while earlier. Maybe that way I wouldn’t feel the
ground beneath my feet. If I ever got out of there at all …
Eventually, of course, the drugs came. In a huge bag, because the bulk of them
were for my scratched cornea. The
ridiculousness of that particular drama wasn’t over yet – I was going to have
to do the hourly dribble of ‘natural tears’ for at least another month, and
though I could see now, and it didn’t hurt any more, my vision was still blurry
through my left eye, and felt by now like it always would be. I imagine not many people go into
surgery to get their rectums removed and their bums sewn up and have to leave
hospital with copious supplies of eye medication. But who wants to be like everyone else anyway? Everyone else would wear shoes to leave
hospital.
As I was walking through the corridor a doctor chased after
me to tell me I was low on potassium.
I told him I often am, and that I would eat a banana every morning to
keep it level. He said that was a fine idea, but I should also take these pills
the size of 2p pieces and thickness of a slim paperback, for the next few weeks
as well. I had to mix them with
water and drink the solution. I
took them, added them to the sack of meds and told husband that he could take
them to the chemist when we got home.
I’d had that stuff before – I’d rather drink liquid morphine by the
cupful. I’d rather drink the
contents of my ileostomy bag.
Really. Walking through the
street in the socky things was as painful and damp and ludicrous as I’d
expected it to be, but it was kind of funny as well, and I suffered no ill
effects. Maybe it was the
morphine, perhaps I was still depersonalitized (yes – got it in again) and
incapable of minding whether it hurt or not, or maybe it just wasn’t all that
bad. Mostly, I think it was
probably because I was going home.
This whole Operation Ileostomy Parts 1 and 2 was finally over. At least, the really hard bit was. Now I’d get to lie in my bed for a few
weeks watching telly and eating chocolate. Of course, I’d have to watch it all again at some point –
liquid morphine does weird things to your memory.
Thanks for sharing your adventure with us. I just got my ileostomy this past April and I am still to the point that even showering scares me so the thought of swimming was totally out of the question. I would love to take my young daughters though so your good experience gives me the motivation to get over my fear!
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